FACES: National Craniofacial Association

(n.d.)

Craniosynostosis

Genetic and Rare Diseases Information Center

(2023)

Craniosynostosis

National Organization for Rare Disorders

(2023)

Primary Craniosynostosis

American Academy of Pediatrics

(2020)

Uneven Head Shape in Babies: Causes and Treatment of Craniosynostosis

Centers for Disease Control and Prevention (CDC)

(2023)

Prevalence - Health, United States (cdc.gov)

Centers for Disease Control and Prevention (CDC)

(2023)

Facts about Craniosynostosis

World Health Organization

(2022)

Growth Charts

World Health Organization

(2023)

Social determinants of health

Agency for Healthcare Research and Quality

(2024)

The SHARE Approach: A Model for Shared Decisionmaking - Fact Sheet 

Centers for Disease Control and Prevention

(2023)

Minority Health

Centers for Disease Control and Prevention

(2022)

What is Health Equity?

Children’s Craniofacial Association

(2015)

A Guide to Understanding Craniosynostosis

Gillette Children's

(2023)

Craniosynostosis

American Society of Craniofacial Surgeons

(n.d.)

Craniosynostosis

Children’s Craniofacial Association

(n.d.)

Syndromes

Centers for Disease Control and Prevention

(2022)

Genetic Counseling and Testing

Centers for Disease Control and Prevention

(2022)

Genetics Basics

American Psychological Association

(2024)

Clinical Neuropsychology

Gillette Children’s

(n.d.)

Craniosynostosis Surgery (Cranial Vault Remodeling)

American Cleft Palate Craniofacial Association

(n.d.)

Find an ACPA Approved Team

American Cleft Palate Craniofacial Association

(n.d.)

Find an International Team

World Health Organization

(2021)

Malnutrition

International Society of Craniofacial Surgery

(n.d.)

What is Craniofacial Surgery?

Gillette Children’s

(2022)

Managing Your Child’s Pain at Home After Surgery

Gillette Children’s

(2023)

Deformational Plagiocephaly (Flat Head Syndrome)

American Academy of Pediatrics

(n.d.)

Safe Sleep

American Academy of Pediatrics

(2020)

American Academy of Pediatrics Releases Clinical Report: Differentiating Infant Head Shape Abnormalities

Google sites

(2024)

Keegan’s 5K for Craniosynostosis Awareness

National Craniofacial Association

(n.d.)

Apert Syndrome

National Craniofacial Association

(n.d.)

Crouzon syndrome

National Craniofacial Association

(n.d.)

Pfeiffer syndrome

National Craniofacial Association

(n.d.)

Saethre-Chotzen syndrome

Gillette Children's

(n.d.)

Apert Syndrome

Genetic and Rare Diseases Information Center

(2023)

Apert syndrome

Genetic and Rare Diseases Information Center

(2023)

Crouzon syndrome

Genetic and Rare Diseases Information Center

(2023)

Pfeiffer syndrome

Genetic and Rare Diseases Information Center

(2023)

Muenke syndrome

Genetic and Rare Diseases Information Center

(2023)

Saethre-Chotzen syndrome

National Organization for Rare Disorders

(2019)

Apert syndrome

National Organization for Rare Disorders

(2019)

Crouzon syndrome

National Organization for Rare Disorders

(2022)

Pfeiffer syndrome

National Organization for Rare Disorders

(2023)

Muenke syndrome

National Organization for Rare Disorders

(2015)

Saethre-Chotzen syndrome

American Academy of Pediatrics

(2017)

Children with Congenital Hand Anomalies & Malformations.