Cerebral Palsy Alliance

(2014)

What is Cerebral Palsy

Cerebral Palsy Foundation

(2016)

What Is Cerebral Palsy?

Ontario Brain Institute

(2017)

Meet Jessica. This Is What She Wants You to Know about Cerebral Palsy

CP Now

(2015)

The Cerebral Palsy Toolkit: From Diagnosis to Understanding

UK National Institute for Health and Care Excellence (NICE)

(2017)

Cerebral Palsy in Under 25s: Assessment and Management

Gillette Children’s

(2022)

Cerebral Palsy Road Map: What to Expect as Your Child Grows

(The road map covers all types of CP and all GMFCS levels. It is organized into four age groups from birth to age 18. It covers 10 areas of interest including mobility, musculoskeletal, and interventions.)

Emily Perl Kingsley

(1987)

A Parent’s Perspective: "Welcome to Holland"

CP-NET

(2015)

Creating Possibilities for Cerebral Palsy

CanChild

(2024)

The ICF for Parents (P-ICF)

(Scroll down the page for a very useful video series on the ICF.)

Cerebral Palsy Foundation

(2016)

The F Words of Disability

CP-NET

(2018)

My Favourite Words

CP-NET

(2015)

These Six F-Words Won’t Fill up Your Swear Jar: What Do the F-Words Mean to Youth with Impairments?

CanChild

(2013)

GMFM Score Sheet

World Health Organization (WHO)

(2024)

Motor Development Milestones

Centers for Disease Control and Prevention (CDC)

(2024)

CDC’s Developmental Milestones

Healthy Children

(2024)

Does My Child Have Physical Developmental Delays?

(Healthy Children is a website of the American Academy of Pediatrics)

Cerebral Palsy Alliance

(2015)

Types of Cerebral Palsy

CanChild

(2007)

Gross Motor Function Classification System Expanded and Revised

CanChild

(2018)

GMFCS Video

Cerebral Palsy Foundation

(2016)

Insights from Experts: Motor Classification

CanChild

(2011)

GMFCS Family Report Questionnaire

(Scroll down to find separate sheets for each of the four age groups: 2–4, 4–6, 6–12, and 12–18)

MACS

(2010)

Manual Ability Classification System for Children with Cerebral Palsy 4–18 Years

BMFM

(2016)

Bimanual Fine Motor Function

MACS

(2013)

Mini-Manual Ability Classification System for Children with Cerebral Palsy 1–4 Years of Age

CFCS

(2011)

Communication Function Classification System (CFCS)

Pennington et al.

(2010)

Viking Speech Scale (VSS)

Sussex Community NHS Foundation Trust

(2024)

Eating and Drinking Ability Classification System (EDACS)

Stella Maris Infant Lab for Early Intervention

(2021)

Visual Function Classification System (VFCS)

CanChild

(n.d.)

On Track Measures

CanChild

(2024)

Family-Centred Service

SickKids

(2024)

CPChild

Physiopedia

(n.d.)

Development of the Child with Cerebral Palsy

Cerebral Palsy Foundation

(2016)

The Brain

Centers for Disease Control and Prevention (CDC)

(2001)

Birth to 36 Months: Boys

Centers for Disease Control and Prevention (CDC)

(2000)

2 to 20 Years: Boys

Centers for Disease Control and Prevention (CDC)

(2001)

Birth to 36 Months: Girls

Centers for Disease Control and Prevention (CDC)

(2000)

2 to 20 Years: Girls

Life Expectancy Project

(2011)

New Growth Charts

(These charts are “for height, weight, and BMI for boys and girls with cerebral palsy, stratified by GMFCS”)

Centers for Disease Control and Prevention

(2016)

ROM Measurement Procedures: Knee Flexion and Extension

Med School Made Easy

(2013)

Clonus

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

(2016)

Sialorrhea in Cerebral Palsy

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

(2021)

Respiratory Health in Cerebral Palsy

Cerebral Palsy Foundation

(2021)

The power of wheels

Cerebral Palsy Foundation

(n.d.)

GO BABY GO

Cincinnati Children’s

(2008)

Guidelines for Determining Frequency of Therapy

Gillette Children’s

(2024)

Rehabilitation Therapies Episodes of Care in Childhood and Adolescence

Novak I, Morgan C, Fahey M, et al.

(2020)

State of the evidence traffic lights 2019: Systematic review of interventions for preventing and treating children with cerebral palsy

Curr Neurol Neurosci Rep, 20, 1–21

Loughborough University Peter Harrison Centre for Disability Sport

(n.d.)

Fit for Life

Loughborough University Peter Harrison Centre for Disability Sport

(n.d.)

Fit for Sport

Cerebral Palsy Foundation

(n.d.)

Home modifications

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

(2024)

Cerebral palsy and dystonia

Gillette Children’s

(2024)

Typical ROMs

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

(2017)

Hip Surveillance in Cerebral Palsy

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

(2016)

Osteoporosis in cerebral palsy

Gillette Children’s

(2024)

Management of Scoliosis

Triple P

(n.d.)

Parenting Program

Got Transition

(n.d.)

Got Transition 

(aims to help youth and young adults move from pediatric to adult health care)

American Academy for Cerebral Palsy and Developmental Medicine

(2024)

Lifespan Journal Digest

Centers for Disease Control and Prevention (CDC)

(2022)

BMI

John Hopkins University Press

(2017)

Cerebral Palsy: A Complete Guide for Caregiving

Freeman Miller and Steven Bachrach and The Cerebral Palsy Center at Nemours/Alfred I. duPont Hospital for Children 

Mac Keith Press

(2012)

Cerebral Palsy: From Diagnosis to Adult Life

Peter Rosenbaum and Lewis Rosenbloom  

Mac Keith Press

(2014)

Cerebral Palsy: Science and Clinical Practice (Clinics in Developmental Medicine)

Edited by Bernard Dan, Margaret Mayston, Nigel Paneth, and Lewis Rosenbloom 

MacKeith Press

(2010)

Physiotherapy and Occupational Therapy for People with Cerebral Palsy

Edited by Karen Dodd, Christine Imms, and Nicholas Taylor  

Mac Keith Press

(2009)

Developmental Disability and Aging

Edited by Gregory O’Brien and Lewis Rosenbloom

Butterworth Heinemann Elsevier

(2009)

Finnie’s Handling the Young Child with Cerebral Palsy at Home

Edited by Eva Bower 

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

​

The AACPDM is an academy of health professionals “dedicated to providing multidisciplinary scientific education and promoting excellence in research and services for the benefit of people with and at risk for CP and other childhood-onset disabilities”

BlazeSports America

​

This US national sports organization supports people with physical disabilities

CanChild Centre for Childhood Disability

​

CanChild is a nonprofit research and educational centre at McMaster University in Ontario, Canada. It offers resources for both professionals and families on a variety of developmental conditions

Centers for Disease Control and Prevention (CDC):

​

The CDC is the leading national public health institute in the United States

Cerebral Palsy Alliance

​

The Cerebral Palsy Alliance is an Australian treatment and research center

Cerebral Palsy Daily Living

​

An educational resource for families of children with CP

Cerebral Palsy Foundation

​

Leading research, innovation, and collaboration that changes lives for people with cerebral palsy—today. Resources include a video library with a collection of videos on different aspects of CP that is well worth exploring. It also publishes useful fact sheets

Cerebral Palsy Research Network (CP Research Network)

​

CP Research Network is a group of doctors, therapists, and patient advocates “collaborating to improve treatments and outcomes for people with CP.” The network hosts MyCP for the CP community to participate in research and discussions

Cerebral Palsy Sport

​

This UK national sports organization supports people with CP and other physical disabilities.

Childhood Disability LINK

​

Childhood Disability LINK is a Canadian organization “Linking Information and New Knowledge” on childhood disability to service providers and families.

Developmental Medicine & Child Neurology

​

This journal publishes many papers relevant to spastic diplegia. Papers are freely available online one year after publication. The journal also publishes plain-language summaries to make the research more accessible.

Everyday Health

​

Everyday Health produces content related to health and wellness. It includes a section on CP.

Kids Brain Health Network

​

Kids Brain Health is a Canadian network of researchers and health professionals dedicated to helping children with neurodisabilities and their families.

Peter Harrison Centre for Disability Sport

​

The Peter Harrison Centre for Disability Sport is an internationally renowned disability sport research center located at Loughborough University in the United Kingdom.

Scope UK

​

Scope is a disability equality charity in England and Wales.

Surveillance of CP in Europe (SCPE)

​

This group aims to “develop best practice in monitoring trends in CP and to disseminate knowledge to health professionals, policy makers, patients, and families, to provide information for resource planning, and raise standards of care for patients with CP.”

United Cerebral Palsy (UCP)

​

UCP is a US organization that "educates, advocates, and provides support services to ensure a life without limits for people with a spectrum of disabilities."

UP–the adult cerebral palsy movement

​

UP is a UK-based adult CP organization. Its “movement is about positively making the changes in ourselves, and in society, so that we can live our best lives.”