“A vital educational resource for patients, their families, and health care professionals alike, emphasizing evidence-based best practice and providing guidance for exploring the literature and further research. Beyond the pragmatic medical information provided, the text underscores the critical partnerships between patients, their families and caretakers, and health care professionals in optimizing outcomes for individuals living with this lifelong condition.”
BRYAN SNYDER,
Maurice Mueller Professor of Orthopaedic Surgery, Harvard Medical School; Orthopaedic Surgeon, Cerebral Palsy Center, Boston Children’s Hospital, US
“The team at Gillette Children’s has created an outstanding second book on scoliosis. This resource skillfully combines the latest clinical research with personal stories, weaving together a rich tapestry of experiences that reflect the many diverse aspects of this condition. As a parent of a teenage daughter recently diagnosed with complex scoliosis, I understand the pressing need for accurate information and support. I often wished for a reference guide of this caliber during my search for information to help us navigate this journey. This uniquely practical guide offers clear language and step-by-step instructions, addressing the complexities of scoliosis throughout a person’s life. Having access to this information ultimately empowers families like ours to make informed decisions in collaboration with multidisciplinary teams, balancing clinical insights with the evolving needs of our children. I highly recommend this impactful book for families and professionals working in the field of scoliosis. Congratulations to everyone who contributed to this invaluable work, which brings hope and clarity to families living with scoliosis.”
ANN MARIE SUTTON
Parent of daughter with neuromuscular scoliosis, Ireland
“This is the premier resource for patients and parents affected by nonidiopathic scoliosis. It is a comprehensive book that outlines the science behind how scoliosis occurs and how it is treated when discovered. It is easy to read for nonmedical individuals but also detailed enough for medical professionals to use as a reference. It will help countless patients and their families to answer questions about their condition and how to navigate the many treatment options.”
ROBERT H. CHO,
Pediatric Orthopaedic Surgeon, Pediatric Spine Surgeon; UCLA Clinical Assistant Professor, US
“Gillette has put together another great resource for patients and families. The figures are clear and easy to understand. The team did an excellent job making this difficult subject matter accessible to all.”
KEITH D. BALDWIN,
Director of Orthopedic Trauma, Associate Professor, Children’s Hospital of Philadelphia, US
“This book offers an invaluable resource for families navigating the complexities and emotions of scoliosis management. The comprehensive and compassionate approach presents clear explanations as well as practical strategies, making the book an essential resource for parents. The accessible writing style helps families to understand their child’s condition and actively participate in their care.”
DAVID P. MOORE,
Consultant Orthopaedic Surgeon, Children’s Health Ireland
“The experts at Gillette Children’s Hospital have written a well-structured and accessible guide for families managing the complexities of nonidiopathic scoliosis. Focused on congenital, syndromic, and neuromuscular forms of the condition, this resource outlines the diagnostic process and treatment pathways—including both nonoperative and surgical approaches—with clarity and up-to-date clinical precision. Authentic stories from patients and families humanize these often challenging diagnoses. This book will empower families as they collaborate with their spine care teams on treatment decisions.”
SUMEET GARG,
Pediatric Orthopaedic Surgeon, Children’s Hospital Colorado; Professor of Orthopaedic Surgery, University of Colorado School of Medicine, US
“The book blew me away. I cannot believe how easy it was to understand; I learned so much. I wish I had this years ago. I’m sad I didn’t but so happy to have it now. I’m going to read it again! All surgeons and those associated with scoliosis should read this book.”
DEIRDRE MCDONNELL,
Adult with congenital scoliosis, Ireland
“I thoroughly enjoyed reading the book. I believe many families dealing with scoliosis, patients themselves, and health care team members will find it highly beneficial. The clear and helpful illustrations effectively explain scoliosis management, making it an excellent resource for understanding treatment options.”
DAVID E. LEBEL,
Paediatric Orthopaedic Surgeon, Head of Spine Program, Hospital for Sick Children (SickKids), Toronto; Associate Professor, Faculty of Medicine, University of Toronto, Canada
“Medical diagnoses such as scoliosis can be stressful to both patients and their families. While there is information available for health care professionals through the scientific literature, there is a lack of information available for families and other laypeople. This book is the exact resource needed for patients and families. With straightforward organization and easy language, it is a pleasure to read and quite informative. The unique combination of professional information and the family perspective on the conditions and treatment makes this a must-read for both health care professionals and patients alike. The authors and institution should be commended for such a fine contribution that will empower families and enhance the care of patients with scoliosis.”
MICHAEL J. HEFFERNAN,
Director, Pediatric Orthopaedic Surgery Fellowship Program, Children’s Hospital Los Angeles; Associate Professor, Department of Orthopaedic Surgery, Keck School of Medicine, University of Southern California, US
“I am not only a parent of a child who has scoliosis but a medical professional as well, and this book provides priceless information for families and patients who have scoliosis. The journey of scoliosis treatment varies greatly between every person who has the condition, and this book, full of factual and practical information, highlights the different causes and treatments. My favorite parts are the patient stories that remind me how resilient all kids are!”
BECCA WURGLER,
Parent of child with neuromuscular scoliosis, US
“After the success of the book Idiopathic Scoliosis, Gillette’s scoliosis experts have made another significant contribution. In this volume, they focus on some of the most challenging spine deformity cases, including congenital, syndromic, and neuromuscular scoliosis. The book is an informative and supportive resource for families and patients with nonidiopathic scoliosis. Insightful and compassionate, it provides doctors, patients, and families with a guide to understanding the condition. The authors expertly translate complex medical concepts into accessible language, offering valuable insights and practical advice. The clinical stories candidly address the associated difficulties, anxieties, and fears of the disease, offering valuable emotional support and reassurance that patients and their families are not alone. It’s clear that the book was written by experienced professionals who care deeply about their scoliosis patients. It is a must-read for families navigating this challenging condition.”
FEDERICO CANAVESE,
Head, Orthopaedic and Traumatology Department, IRCCS Giannina Gaslini Institute, Genoa; Professor of Pediatric Orthopaedics, University of Genoa, Italy
“This book addresses a complex topic in a thorough but accessible way. The authors explain medical concepts with clarity and empathy while offering a balanced view of diagnosis and treatment options. The integration of patients’ lived experiences with up-to-date treatment frameworks makes it unique and relevant as a clinical and educational tool. It is a commendable contribution to family-centered health education.”
JOHN S. VORHIES,
Director of Scoliosis and Spine Deformity Surgery and Research, Assistant Professor of Orthopaedic Surgery, Stanford Medicine Children’s Health
“Accessible, well written, and easy to understand, this book summarizes nonidiopathic scoliosis from soup to nuts for everyone from patients and families to medical professionals caring for these patients. The text makes it clear that caring for these patients means caring for the entire patient (and family), not just the condition of scoliosis. The patient vignettes scattered throughout the book create empathy and a much better understanding of the patient experience.”
BENJAMIN D. ROYE,
Pediatric Orthopedic Surgeon, Morgan Stanley Children’s Hospital of New York; Richard T. Arkwright–St. Giles Foundation Associate Professor, Orthopedic Surgery, Columbia University, US